Now I’ll let you into a little secret…I haven’t met Jack. I found out about him through a Facebook post on my cousin’s wall a few years ago and when I decided to do something for me to get back into fitness and chose this to honour my friend’s memory, I thought this was very fitting as it keeps the money raised up north. I don’t know what my friend Carly went through growing up but I know she was in and out of hospital a lot. So we need to beat this and get the awareness out there. So here’s Jack’s story…..
Jack is 6. He was diagnosed at 3 weeks. Although Jack looks like any normal 6 year old, on the inside he is fighting to stay alive. He finds it hard to do what we all take fur granted every day. He fights to simply breathe. Jack takes upwards of 33 tablets a day. Two hours of hard physio and this is when he is well!! At any time a chest infection can have him admitted to hospital for weeks of intensive and invasive treatments. So much for a 6 year old to go through abs even harder knowing the NHS have declined the wonder drug orkimbi (please spell check), Our fight is to let people know what cf is, how people live with this horrible condition and how it’s beatable together xx
Cystic fibrosis is a life-limiting inherited condition caused by a faulty gene that controls the movement of salt and water in and out of cells. This causes mucus to gather in the lungs and digestive system and creates a range of challenging symptoms.
So every little counts
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